Monday, July 8, 2013

Hyperbarics Day 1

We are back to Kansas City to try Hyperbaric Oxygen Therapy with Christian again. We did this back in 2009-10. If you go back to those years on the blog you can look at what we did and pics and video.
What led us to do this? We are trying to get Christian off of the ketogenic diet. Although he has had great success on seizure reduction we have also had not so pleasant side effects. Christian has kidney stones due to the diet. We knew this was a possibility but hoped it wouldn't happen. Also the diet is just not natural and lacks vitamins (he takes vitamins to make up for this) and minerals. Also it's just at times annoying to have to make meals and take them, he can't eat with kids at school or bday parties. There are just a lot of little things that come in to play with being on the diet. He has been on it 3 yrs now. We are grateful for the time it has given Christian to not have seizures everyday.

We tried to wean down off the diet and that has not been successful. He has started to have more seizures after going down 2 steps of ratios on the diet. So we see that this is not a possibility without having more seizures. That leads me to why we are here doing hyperbarics. We are hoping that it will reduce his seizures like it did when he was 2yrs old.

The link below will also explain what Hyperbaric oxygen therapy is. Just click on the sentence.

This is the place we are doing HBOT


THANK YOU:
Thank you to all of you who participated in the Dodging to make a Difference -Dodgeball Tourn.
The money raised is helping Christian get the therapy he needs. Hyperbaric Oxygen therapy is not  covered by insurance. We are hopeful that we will see some good things start to happen for  Christian because of this therapy. At the end of the day, we want to say that we tried to help him have the best life possible.

1 comment:

The Lundgrens said...

Can't wait for updates! Praying!