Wednesday, April 22, 2009

So what if I cried in the bathroom stall. . . .

I mean do other parents not do that after a rough EEG procedure at the hospital???
Oh my I bet that title got your attention. I wouldn't be truthful about my day to day adventures if I didn't include this blog-so i'm stepping out and being vulnerable. I took Christian for an EEG Monday morning at 8am. Well he fell asleep and when I got him out of the stoller and in to me lap all heck broke loose. They were marking his head and scrubbing the spots where the electrodes would be placed and that was not ok with Christian. For the next 25mins. he screamed-not cried-screamed! I thought this is a nightmare that can not be soothed away. I knew he would just have to run his course. I really don't think he was actually fully awake when he was screaming and straightening his body. So yes I just cried-mostly because there was nothing I could do to help soothe him. Talk about embarrassing situation. Me, the 2 ladies, and a screaming 2 year old. I tried to just look the other way while I cried-like that would make them not see me crying:). Finally it was over!!
I made my way to the closest bathroom so that i could cry in private. So there I was wishing the toilet had a lid so I could put it down to sit down because I was holding Christian (he's heavy and still whiny) because the handicap stall was not big enough for the stroller to fit in. I thought about putting the paper cover on the toilet seat but i didn't think i could get it to stay there with just 1 hand. They are so flimsy.
Luckily no one walked in during this.
So I went on up the the neurologist office and I think he could tell it had been rough because he was very nice.
Christian was sound asleep in his stroller and i was not about to risk waking him up so I treated myself to a Mt.Dew and lemon poppy seed muffin. I parked us in the outpatient lobby and enjoyed my dew and muffin and thought it's only 11:00.
After he woke up, I drove on the Walgreens to pick up his medicine and the pharmacist says "your insurance won't cover this". . .. I say to myself "of course"! (this was later worked out).

And so there ya have it. My EEG nightmare. Don't feel sorry for me though, we all have these days but God is so good and you know what it makes me feel very grateful for the days that aren't like this.

Wednesday, April 8, 2009

Go Lefty! Go Lefty!

I'm so very proud of left! that's Christian's left arm. In the past 3 weeks i'm just astounded at how much range of motion he has in it and how much he's moving it on his own. I just sit and stare in amazement. I wonder if this could be some after effect of the hyperbaric therapy? Thank you Lord! I have some video that I will put on with this later to show you all. I just wanted to brag on the advancements in Lefty!

Blue placard

So i must blog about my blue placard (i think that's how you spell placard). I have never used that word until now. i'm referring to my blue handicap placard that I now have if i need it to hang on my mirror for parking when Christian is with me. I have so many thoughts about this thing.
First of all. . never thought i'd have one so that was really weird to go get it at the license bureau and I never really thought I needed one but uhh i do have a child with special needs and so on. So i fall in to that category. There's actually 3 categories (i think) that were on the sheet the Dr. fills out. We were marked for the first one.

Second of all. . once i got the blue placard and used it I was (A) afraid that the act of parking and then putting it up on the mirror that it seemed like i was cheating and just whipping it out to park close but if you read on the placard it actually says not to drive with it hanging on your mirror--so i felt better about that. Apparently it obstructs your view while driving. (B) I was nervous that after using it and getting Christian's stroller out (which comes in 2 pieces) that a person would be watching and think "she just has a child. why does she think she can park in handicap". i'm always ready for someone to do that. I"m almost scared to use it because it's not obvious enough that we need it. How silly!

Third of all. . . I have now noticed that there are not just handicap parking spaces but some of them say van accessible or van only. So is it illegal for me to park in those if i don't drive a van or just the ones that say van only? o so complicated.

Fourth of all. . . i have rules for using my placard. (A) only when Christian is with me (obviously) (B) only if it is raining or super cold and i'm in a hurry (like late for therapy or doctor appointment) (C) if there is a just as close space that is not handicap i will use it.

Those are my feelings and concerns and rules for my handicap placard.