Day 24 of diet & future events

Well Christian has adapted well to the diet. He is his old self again. We have been running 12-18 seizures a day for the past six days. Hopefully this is a sign of more reduced number of seizures. I'm willing to go a month and a half now that we are seeing some kind of reduction.

3rd Annual Dodging to Make a Difference Dodgeball Tournament
-date and place to be announced. There is a chance we may not be able to have it at Upper Elementary due to the fee they are charging. Also Bryant Elijah( our son on the way) is due around dodgeball time so we are still waiting on the date of tournament. Either i will be very pregnant or have him strapped on me in a carrier:)

day 6 of diet and hospital story

This is Christian day 1 of diet in his stander with his iv pole beside him. We had him stand and wheel around the halls for a change of scenery.

well here is the update-this is easier to implement at home! we are able to get his fat in his diet with oil, butter and mayo so he doesn't have to just drink the heavy whipping cream. he was refusing it and throwing it up the last day at the hospital. i think it was just too much for his stomach. he seems to be getting back to the "old christian". the first few days he just wasn't smiley and happy like usual. the seizures have not reduced any but it's still early.

My hospital story---
So something always happens when we have a hospital stay or visit that leaves me with a funny, sad, or emotional story to share. This story i would categorize under the "o dear, i need some help" category. So here we go. . the last day the nurse takes his iv out and it's not bleeding so she just puts a band-aid on and no big deal. . .except that 45 seconds after she walks out i look down and blood is oozing out of the band-aid everywhere. so i can't reach the call button for help and i have started to collect the blood in my hand(so as not to get on Christian's nice shirt he's wearing) that is not holding christian. i basically have him with one arm and sitting on my legs. i "squat/walk" to the hall and yell for help. the blood is cupped in my hand and spilling out by now. luckily our room is right across from the nurses station. a med student hears me the second time and pops her head out and i'm telling her i need help(as if it's not apparent by a 5 mth pregnant mom squatting in the hall with blood dripping on the floor from son's arm). she yells for the nurses and walks away. thank you med student for at least yelling for the nurses. so then our nurse and several others come to take him and stop the bleeding. I was i'll admit kinda crying and saying "i couldn't reach the button". the nurses were wonderful and stopped the bleeding. there was no big crisis just lots of blood! lesson learned-l1)et the blood just drip on the floor and use other hand for holding child. 2) yell louder 3)apply pressure to bleeding 4)umm probably don't worry about nice shirt:))

day 4-going home!

yeah today we go home! they are nice here but you know it's always easier not living in one room. Christian is starting to smell like greasey fat. uhhh. i think it is seeping out his pores. they will take some final labs before we leave and hopefully we will leave after lunch.