pump day 2

The first night went ok. He did well thru the day-played with toys, happy, eating. . . then around 8 pm tried to change his diaper and he was on the end of that round of pain meds and boy oh boy!!! He was in so much pain. He was screaming and grinding his teeth. We finally got that under control and he slept until 3 am and was in discomfort again. It was time for the next pain meds anyways. So he is still sleeping as of now (11am).

Yesterday his legs were looser than normal but not where they will need to be. They are not messing with the baclofen dosage right now. That will be done at Rankin. He will still not be able to sit up more than 45 degrees today. In the morning he will be able to get up.

In the meantime hospital life is as good as it could be. The staff is wonderful, family room amazing, and bed pretty comfy in his room. Of course, there is the constint flow of people. But they are just doing there jobs. O how I long for this to be over and be home. But this is the journey!


REST OF DAY 2 ADD ON:
Christian had a great day today. No obvious signs of pain-ate 2 and half meals and played. I just left to get some sleep while eric sleeps at the hospital tonight. As I left, Christian was sleeping. Hopefully he will have a peaceful night sleep.