Every day gets a little better-bruising is down, times of uncomfortableness is more spread out, rash from tape is better,happier! In OT, he is doing some great sitting with little assistance, working on grasping puzzle pieces, switch work-which mean using a switch to operate a toy and then adding another switch that does nothing. He has to figure out that only the 1 operates the toy. He definitely recalls by memory where the correct switch is. Sometimes gets stuck on the one on his right side. He also got to do some swinging. loved!!!
In PT, he did some standing which has gotten better. He wasn't wanting to stand at all until 2 days ago. He is so used to using his "tone" to stand and we took that away. Now he has to build up the muscles and allow the brain and body to get used to standing without tone. Tried walking in a walker but got nothing from that. He is tolerating being in his stander so that's good!
There are 2 other girls in the day program and so we eat lunch together and talk which is so fun. They are 9 and 12. Such personalities!!! One of them talks about Bryant everyday. She met him last week. They like to talk to Christian too! I will miss them. The 12 yr old has the same OT as Christian and I said she gave me some good ideas to do at home with him. She said"I'm glad my momma don't come here" Luv it.
MATTER OF THE HEART:
Anytime I go away for things like this I just know that there will be people that I run in to that I'm supposed to-divine appointment is what I like to call it. It almost excites me! I tried to be aware of that and not let opportunities for God to use me pass me by. So it happened in the kitchen...A young couple had their first son early and he is in the NICU here and has a heart defect. So she's telling me about it and I just know that this is where I'm supposed to share what God did for Christian's heart...in my mind I'm thinking ok this is it! And so I shared how Christian was born with a heart defect and the doctor said it would never fix itself and how at 3 months old we went to the doctor for our monthly visit and they did an echo and the technician says "you said he had ebsteins anamoly?" and i say yes. And at that moment you could see this look on her face like something didn't match up. She continues and finishes and we go wait for the doctor. He comes in and says "I don't know how to explain this but his heart is perfect. There's nothing wrong with it anymore. This has never happened." And I say "well we believe in the power of prayer". This was just one of our miracles in the last 5 yrs. And so I told this young mom to just know that God is working and we will be praying for him! I think 5 yrs ago God knew this "matters of the heart" kitchen encounter would happen:) We still have the drawing that the doctor gave us explaining his heart condition. It reminds me that nothing is too big for Him and He knows way more than we do and the whys of it all. Also a funny fact is that on paper doctors would look at his heart defect he was born with and say "that doesn't really match up with the other stuff that happened". And then they always say "so he doesn't have this anymore? "no" Did he have surgery? "no". :)))
In PT, he did some standing which has gotten better. He wasn't wanting to stand at all until 2 days ago. He is so used to using his "tone" to stand and we took that away. Now he has to build up the muscles and allow the brain and body to get used to standing without tone. Tried walking in a walker but got nothing from that. He is tolerating being in his stander so that's good!
There are 2 other girls in the day program and so we eat lunch together and talk which is so fun. They are 9 and 12. Such personalities!!! One of them talks about Bryant everyday. She met him last week. They like to talk to Christian too! I will miss them. The 12 yr old has the same OT as Christian and I said she gave me some good ideas to do at home with him. She said"I'm glad my momma don't come here" Luv it.
MATTER OF THE HEART:
Anytime I go away for things like this I just know that there will be people that I run in to that I'm supposed to-divine appointment is what I like to call it. It almost excites me! I tried to be aware of that and not let opportunities for God to use me pass me by. So it happened in the kitchen...A young couple had their first son early and he is in the NICU here and has a heart defect. So she's telling me about it and I just know that this is where I'm supposed to share what God did for Christian's heart...in my mind I'm thinking ok this is it! And so I shared how Christian was born with a heart defect and the doctor said it would never fix itself and how at 3 months old we went to the doctor for our monthly visit and they did an echo and the technician says "you said he had ebsteins anamoly?" and i say yes. And at that moment you could see this look on her face like something didn't match up. She continues and finishes and we go wait for the doctor. He comes in and says "I don't know how to explain this but his heart is perfect. There's nothing wrong with it anymore. This has never happened." And I say "well we believe in the power of prayer". This was just one of our miracles in the last 5 yrs. And so I told this young mom to just know that God is working and we will be praying for him! I think 5 yrs ago God knew this "matters of the heart" kitchen encounter would happen:) We still have the drawing that the doctor gave us explaining his heart condition. It reminds me that nothing is too big for Him and He knows way more than we do and the whys of it all. Also a funny fact is that on paper doctors would look at his heart defect he was born with and say "that doesn't really match up with the other stuff that happened". And then they always say "so he doesn't have this anymore? "no" Did he have surgery? "no". :)))
No comments:
Post a Comment