day 4 pump

Christian finished yesterday beautifully!! No problems with pain and we weaned down to just Tylenol every 6hrs. We picked up our 1 year old Bryant yesterday. He has been staying with my mom and dad. I'm not sure that he even wanted to see us because he likes them so much (which is great)! thanks mom and dad and granny!!

We contemplated waiting one more night to get him .....and probably should have. He usually sleeps thru the night but was up twice last night and woke up Christian at 3am which is when his pain med would have ran out. We wanted to see if he would sleep thru the night but....thanks Bryant:) They both went back to sleep thankfully. I prayed very hard that they would just go back to sleep:)

RANKEN JORDAN-this is a pediatric rehab facility in St. Louis. It is very nice and has anything you could need. Some patients stay there for weeks or months while others just have outpatient therapy. Christian is in there day program. He will go from 9-2 and receive OT and PT. In between those times of therapy he will get to participate in music therapy or art or recreation. Lots to choose from! He was also fitted for a short back brace today that he will where for 3 months. It keeps him from doing too much twisting motion which can make the catheter come loose. They won't it to be good and secure before he does too much of that.

TODAY-Today he has acted a little fussy, guessing from soreness of being up more. However he tolerated his pt and ot evaluation. They even put him on his stomach!! yikes! the pump as well as an incision is on the stomach. It was only for a couple of minutes but this made me nervous. They basically measured his tone(tightness in muscles) and what he could do to see what they need to work on next week. He and Bryant are napping now..hallelujah:)

We will just relax this weekend and then get going Monday. Thank you all for your kind words and prayers, it means more than you will ever know.