2009

2009 will be divine. that's what my husband stated last year. At the time i have to admit that I didn't know if I truly believed that statement. After all Christian was having 4-6 grand mal seizures a day. Our goal was to get him fed during the day and that was about it considering he would fall to sleep after his seizures. Thank God for a husband who has faith when sometimes I can't see past the seizures for the day.

January- we went to kansas city to try hyperbaric oxygen therapy and intense physical therapy. We saw some decrease in his seizures after this and huge improvements in his motor skills.
May-took a trip to urgent care for a seizure that didn't seem to be stopping. 2 days later his grand mal seizures stopped and have not returned to present day!
He still had his small "bouncy" seizures. We returned for 4 more weeks of hyperbaric treatment and his small seizures stopped.
June-August we experienced lots of family outings that before weren't possible or just weren't enjoyable due to the seizures. Christian also received therapy in Sikeston for a total of 3 weeks over the summer and we saw some amazing results in his strength and his left arm (the weak one).
November-Intense physical therapy in Sikeston. Again Christian gained more strength in his trunk, neck, legs. Improved walking!
December-Christian's eating/chewing has tremendously improved. He is able to eat more food without having it blended! yeah less work for me!

I'm also part of a group of moms that have special needs children. We get together once a month and just hang out and share ideas and information and just laugh!

This year has been one of the best. I look back on all of the changes that have occurred and feel extremely blessed. We continue to pray that one day he will be seizure free! Feel free to look back at jan/feb pics and videos from last year to see how far our little man has come. Thank you for being a part of this journey!

Back in K.C. for hyperbaric treatments

Hi everyone,

We are in kansas city and doing 20 dives. So we are on week 2 of our treatments. This week our friends Tara and her daughter Lilly who are also doing treatments and rooming with us. It's nice having company and an extra hand! The picture below is Christian's first lesson in sharing or should I say letting a girl get have what she wants. The both enjoy piano playing!

The video of him walking is about 3 weeks ago in springfield. We were testing out not having his hip brace on which keeps his hips in line. Sometimes he just wants to lean on it though so we took it off.

I am keeping track of his seizures to see if there is any change after the treatments. This will be good because i won't go off of memory on how many he has per day but it is a little sad to tally mark each time he has one. I'll have to admit one day I said forget it we've hit the 30 mark and i'm done counting. Although yesterday he only had about 18 so that's better than 30!

Thanks for all of your support to get Christian here for these treatments!