We are trying the Ketogenic Diet with Christian, to see if it might help decrease his seizures. We are in the hospital for about 3 days to start it. They will need to monitor certian levels in the body before going home and teach us what and how much to feed him. The diet is high fat and low protein/carbohydrates. He is only allowed a certain amount of food per meal. He will be eating exact calories. The diet is tried when medicine does not help control seizures.
Right now he is still having 20-30 small seizures a day. We felt like this would be worth trying. If it doesn't help we just go back to normal eating. Basically your body uses fat for energy instead of carbs. This releases ketones in your body which in turn affects seizures. We are praying this helps.
1st day
I hate doing I.V.'s for multiple days but that's what we have to do. He screamed , it wasn't fun but that's just how it goes. Right now we he is fasting and waiting for his body to produce ketones to actually start the diet. 19 hrs and nothing. Come on ketones!
More to come. . .
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1 comment:
So proud of you Christian! I am also so super proud of your mom and dad for never giving up or letting up on working and searching for answers for you.
MAMA
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