I'm finally getting some pics and video on here. Sorry just been busy with life.
Christian turned 3 on January 30th. It's hard to believe. He definitly has the big boy look and is as tall as a 4-5 year old. Eric, Christian and I celebrated with cupcakes and a little time at the local gymnastics place. Christian likes their inground trampolines! What kid wouldn't? We decided to hold off on his party until it is warm.
We also decided at this time to hold off on preschool. He would have only been there for 2 and half months so we decided to just wait. In the mean time I have been able to do more with him since we don't have first steps therapy (it ends at 3). I have been able to take him walking in his walker everyday but Sundays. Day of rest for him and mom! His walking has improved tremendously. It is soo exciting to see his first look of independence. He is taking most steps on his own and able to push the walker by himself for about 6 steps. In the video you will see me with my hand in between his legs or more on the right leg. I"m only helping turn his leg outwards. His whole body will turn to the left if i don't. But otherwise he is doing all of the work. We are up to about 30-40 mins of walking a day and then more time standing in his stander or at his table.
His eating has also grown by leaps and bounds. We only blend about 1 meal a day!!! He can eat so many more whole foods which just means less stuff to pack when we leave and more normal meals with other people or at restaurants. It's still slow eating but hey we are getting there. Maybe I will burn our magic bullet blender on the great day that we don't need it anymore.
Special Needs Moms Moment:
The past month during preschool testing there was one of those times when after pointing out how low my child is on a testing scale (not attacking the school, testing has to be done), I went in to one of those overwhelming moments of "wow! he really has a lot to overcome". Most of the time it's not pointed out how low functioning he is or where he is compared to most kids but the time's when that is pointed out it can easily get you down. The tests don't consider where he started and how much progress he has made in 3 years. I think it's one thing to just be blind or just have cerebral palsy or just be non verbal (not that any one of those alone is easy) but it's another thing to be all of those diagnosis. These moments are few and far between and I remember how far Christian has come and not how far he has to go.
Just a Suggestion:
For goodness sake's -open the door for people who have their hands full. I'm sorry but it has to be pointed out. I'm really not bitter but just thought it would give everyone a reminder to be aware of those around you. Or maybe america could install button on everydoor so I could push it and easily take my stroller thru . . and sometimes my walker that i'm dragging behind me:)
I'm just sayin. . . .
Last but not least enjoy the chips of ahoy video!
5 comments:
I see a Chips Ahoy commercial in the making Christian!! You are going to be a star!
MAMA
Robyn - lovin the walkin' videos... could you have ever imagined a year ago that he would have come this far? God is good. Praying for you this week.
Sarah
Love it Eric and Robyn ~ Happy Birthday Christian.
I LOVE IT!!! God is good..... Christian has improved by leaps and bounds. I know you are so proud.
Davene
Wow!! All Christian's hard work has paid off in a BIG way. The walking is great!! We'll have to have some races...but I'm sure C will when! But maybe if she sees another kiddo like her she'll follow? Who knows!
Robyn, I think you should stand up and take a bow. That little man wouldn't be where he is today without your dedication!! You should be soooo proud...and RICH! Just think of all the billable hours you have racked up! Your crown is gonna shine like the top of the Chrysler Building!! Love ya, friend!
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