Go Lefty! Go Lefty!

I'm so very proud of left! that's Christian's left arm. In the past 3 weeks i'm just astounded at how much range of motion he has in it and how much he's moving it on his own. I just sit and stare in amazement. I wonder if this could be some after effect of the hyperbaric therapy? Thank you Lord! I have some video that I will put on with this later to show you all. I just wanted to brag on the advancements in Lefty!

Blue placard

So i must blog about my blue placard (i think that's how you spell placard). I have never used that word until now. i'm referring to my blue handicap placard that I now have if i need it to hang on my mirror for parking when Christian is with me. I have so many thoughts about this thing.
First of all. . never thought i'd have one so that was really weird to go get it at the license bureau and I never really thought I needed one but uhh i do have a child with special needs and so on. So i fall in to that category. There's actually 3 categories (i think) that were on the sheet the Dr. fills out. We were marked for the first one.

Second of all. . once i got the blue placard and used it I was (A) afraid that the act of parking and then putting it up on the mirror that it seemed like i was cheating and just whipping it out to park close but if you read on the placard it actually says not to drive with it hanging on your mirror--so i felt better about that. Apparently it obstructs your view while driving. (B) I was nervous that after using it and getting Christian's stroller out (which comes in 2 pieces) that a person would be watching and think "she just has a child. why does she think she can park in handicap". i'm always ready for someone to do that. I"m almost scared to use it because it's not obvious enough that we need it. How silly!

Third of all. . . I have now noticed that there are not just handicap parking spaces but some of them say van accessible or van only. So is it illegal for me to park in those if i don't drive a van or just the ones that say van only? o so complicated.

Fourth of all. . . i have rules for using my placard. (A) only when Christian is with me (obviously) (B) only if it is raining or super cold and i'm in a hurry (like late for therapy or doctor appointment) (C) if there is a just as close space that is not handicap i will use it.

Those are my feelings and concerns and rules for my handicap placard.

velcro makes me laugh

Expect the unexpected! That's usually what our days are like regarding several issues. Not all bad either. On this regular night we did expect that our son would break out in uncontrollable giggles due to the velcro noise on his walker. The story goes like this-our usuall 8:00pm walker time wasn't going so hot (he was fussin and doing uhhh no walking) so i was going to get him out. When i tore back the big velcro strap he started laughing so hard and then for the next 5 minutes we just made that noise to hear him laugh. He loved it as you can see on the video. Our camcorder was on early and got more footage. What your seeing is the end of the laughing.

Enjoy!

slacker blogger

ok well it's been awhile and i've gotten some comments about my slacker blogging.

Christian had his 2 yr birthday party-it was great but it snowed thus trapping my bro and his family and my dad. I'm including some pics of that.

Ps-on the cake the emblem has a 2 in the middle, not a backwards S! The 2 is just curvy.

Christian is doing well-his seizures in the past 2 weeks have been 1-2 a day. They are predictable as far as happening 20-50 minutes after he wakes up from his night sleep and nap. He continues to do well with his sitting and standing. PaPa made him a bench and table to practice-sit to stands! Thank you!

We are waiting on his new walker to come in. He also swapped his old stander for a new, different one and seems to be more comfortable in it and will stand for almost 45 mins. at a time in it.

Thank you for your continued prayers!

Back Home

well back to my normal life and routine. I think what I liked about my stay at KC is that I went to the same place everyday nothing different, no mail to sort thru, calls to field, doctors appointments. . . just therapy everyday!
Christian is doing well. His seizures range from 1or2 big ones a day to 4-5 a day. We had a 2,2,1 weekend which was great. He's like a different child when he only has 1 or 2. He's happy and energetic all day. We drink those days in and are so grateful. The other days we pray for strength to not get discouraged.
He's still doing great with his sitting skills and we are practicing all of the rest. His therapist were glad to see him again. We also had a belated birthday party. I'll post pics later.

Here we are in the chamber. I think this was our last day. That's Don beside us. Christian held his hand on this last dive. It was sweet.
The other picture is with Dave (owner) and Megan (works at HHI). Thanks for everything guys!

Hello... so about the walk of shame.. bottom line.. it's not pretty !!